A time I was very afraid. I would have to say it was during Bella's first seizure. I knew what to do because my siblings have the same chromosomal disorder vcfs 22q digeorge. I knew that she could end up with the same chromozonal disorder or not have it as there was a 50/50 chance of passing it on however I only had seizures when I was a baby. I have had some passing fainting spells but those haven' happen in years before I had Isabella. My daughter had some blue in her skin tone due to hypocalciuma. low calcium levels causes seizures in digeorge babies. we had gotten her stable but the fear of passing this chromozonal disorder became very real at that moment. I didn't plan for Bella but I was not going to give her up either I grew so in love with her still to this day she is the light of my life my reason to get up every morning. I was fearful that my own issues would start to flare up of how digeorge effects me I didn't know I also scare with how real this rare gentic disorder is. I over came the fear by joining online support groups learning about others who have digeorge and to be honest Bellas and my issues with digeorge are so rare. our calcium levels normalized after our treatments and shes thriving strong willed 6 year old major issues only are sensory issues, ADHD wears glasses and has tubes in her ears.
this is a picture of us.